Tuesday, September 30, 2008

Is Chronic Fatigue real? a repost from my other blog


Here I am awake at 013am. I'll need to take a pill to sleep... I took a pill this morning to stay alert today. I will go to work about this time tomorrow so It's better to sleep in tomorrow (or today really) I'll get up about noon probably.

Yesterday I rode 9 miles into the wind on my bicycle to get the motorhome out of storage. Then I mowed the yard for the first time this year... we have had a cool spring....

I didn't believe in Chronic Fatigue Syndrom until I began to get better. The symptoms of Chronic Fatigue Syndrome are real, but I refuse to believe that we have to live with it the rest of our lives. It last so many years that it gets to be a lifestyle... I ready for a change.

I have felt like crap for the last two weeks but I felt terrific today. Is it possible to be Bi Polar Physically? I call it the Roller Coaster. All are remnants of the fever. At least my moods aren't so up and down as they were right out of the hospital. I never thought I was depressed but I sure would get frustrated from being soooo tired all the time. My new doctors ( I fired all the men Docs) are now treating me for "Shift Workers Syndrome". Everything is a syndrome nowadays.

My job is killing me as I get older. I'm on call 24/7.
This health setback didn't help.

And, I'm on the lineup to go to work at 0400... I was first on the lineup at 2330 yesterday, then 11am then 0100, then 0300, then 0400. This is typical... are you sure you want like to be a Locomotive Engineer?


About 10 years ago I had a fever for nearly a month that included a stay in the hospital and the loss of about 4 years of memory. It also has trashed my short term memory and still affects my sense of smell and taste. I'm lucky 'cause the Doc figured I would not get my sense of smell back. A fever of such duration causes brain damage and can be irreversible. The fever commonly triggers Chronic Fatigue Syndrome... or more accuratly post viral fatique syndrome... not something you want to have and still drive the train for a living. It's been a long haul but I'm finally having more good days than bad days now that the Docs are approaching this from another slant. I got pissed and asked her (the doctor) to either send me home and tell me to stop whining or do something! She gave me a drug called Lyrica for nerve pain witch promptly gave me hives and caused some tingling and I still have ultra sensitive spots on my body.... Never guess where... A bad drug. She also gave me Provigil to stay alert.. kind of a Ritalin for Adults! Also Ambien to sleep... not AmbienCR... it sucks... and don't get generic Ambien. Synthroid for low Thyroid. No side effects from anything but the Lyrica. The Provigil makes me even more chatty and that can be annoying.

At any rate, I have fought Chronic Fatigue for over 10 years and I think I'm finally getting a bit better. Laying on the couch becomes a never ending cycle that becomes a lifestyle. The doc wants me to lose 23lbs in the next year. She also wants me to exercise at 75-80% of my max heart rate (140) for 30 - 5 days a week.

I did 1 hour at 125-140 bpm today.
9 miles.
Avg speed 9.9
Max speed 18.
I weighed 228 last week and 223 today.

Tennis tonight from 6-930
I weigh 222 tonight... I'll eat a tiny piece of cake... we went over to see our little grandson Connor and Maggie has been in a class to decorate cakes.















Tomorrow (May 1) I'll have exactly 4 more years to retirement.

No comments: